Community comes out to support Rebecca Rose Marcinauskis
About 250 people came out to St. Margaret Mary Church Hall last Friday in support of Rebecca Rose Marcinauskis and her family.
Rebecca, 8, was born with a rare chromosome abnormality — only three cases have been reported worldwide — and it has led to several serious medical issues. She has had 20 hospital stays in her eight years and recently had her 51st MRI/CT scan.
Members of the community, including Center Stage Theatre, organized a pasta dinner last Friday to help the family with medical and therapy bills. The hall was packed with those who came out to help.
“For me it truly takes away a lot of the bad stuff and reinforces that hope does exist,” Rebecca’s mother, Laura Marcinauskis, said of the community support. “When you are in the trenches and dealing with the day-to-day, you can forget that.”
Rebecca was thrilled to see Disney characters Ariel and Sebastian show up, thanks to young performers from Center Stage, her mother said.
The family is in the process of meeting with surgeons to discuss when Rebecca will go in for surgery. She has hydrocephalus, or fluid on the brain, and the back of her brain is growing into her spinal cord, her mother said. She also will need a hip replacement because of Legg-Calvé-Perthes disease. Marcinauskis thanked the volunteers and everyone who came.
“It was incredible, the outpouring of support,” she said.